Our Story
I'm Every Woman is inspired by my son Caleb (6) who was born with Wolf–Hirschhorn Syndrome (WHS), it is a chromosomal deletion syndrome resulting from a partial deletion on the short arm of chromosome 4 (4P-), causing severe mobility and developmental challenges.
Countless hospital ER visits and hospital admissions has had an impact on our little family.
Caleb is non-verbal and non-mobile, totally dependent on my husband and I for feeding and everyday living. Caleb has had seven surgeries to date, he eats via a feeding tube (Gastrostomy button), has a port for easy canula access for prolonged seizures lasting anything up to two hours.
For the first eight months of Caleb's life, I mostly kept him to myself for fear of being judged and the unknown. Sharing our story has inspired others and helped me in a way I did not know was possible.
I have met some amazing people along this journey and look forward to meeting many more.